Bri’s biopsy went well last week. Minimal tears and no stitches! We were supposed to change out her bandaid but I wasn’t allowed to go near her hand. Finally 2 days post biopsy I had to force the issue, however while she was “doing it herself” the steri-strips stuck to her bandaid instead of her skin and revealed quite the blood clot underneath. It scared her when she saw it. After an hour or more of arguing, I was able to kind of get a new bandage half way on with the old one still there. The next day the clot was gone and all of the dressing came off. Didn’t seem to bother her.
Got the call yesterday that Bri’s skin biopsy results came back not containing LCH. This means that the tumor biopsy is a “go” on July 9th. I still have mixed feelings about brain surgery and the risks, but the more I research the more I realize that it could be much riskier if we do nothing. Her procedure is officially 2 weeks from tomorrow. I was able to finally get in touch with her Endocrinologist and she is giving Bri a psychology referral … I think that was way overdue, personally.
I’m still getting things in order for the 2 weeks she will be recovering. Despite keeping tabs on my email, I will be taking off of work. We’re having a family party for Bri on the 4th. The hospital still has a strict 2 person rule, so everyone won’t get to see her until she comes home (except Mimi who will be there with us). Huge bummer but completely understandable.
I probably won’t have anymore substantial updates until the week of her tumor biopsy, and the updates will be much more frequent after that. Until then we’ll just try to ignore the clock and enjoy summertime.
Starting the hashtag #briellethebrave
Signing off -Christi
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